LET IDSA HAVE IT ALL.

HELLO, AMERICA! YOU BRAVE LYME-WARRIORS! I just want to wish us all good luck - and take my lyme and give the IDSA a great - green hug and a bug from me! Just to let them have it my way! I have the brain sort - it goes straight to their heads - and : You look great, IDSA! It's all in your heads. Just like mine. Do you feel sick? Chronic lyme does not exist. - How I hope and pray for bug-IDSA-day. - Good health to you all brave warriors! Hugs from me! We all hug with the same bug! And to day I must say I am quite fed up with borrelia burgdorferi! - Just pray for the winning day.

TAKE ME BACK TO THE SILENT FORESTS

I'M HYPER-SENSITIVE TO SOUNDS!

I want to be there in autumn, when the damned birds stopped singing.

Just a week ago, it was me, sitting there on a damp root, getting wet behind.
Never mind.
Not a single bird, not a falling leaf.
What a Life.
I heard the silence of the fog deep down in the valley.

That sound I can stand.

Now, as my lap-top is open, I sit here exactly like that poor creature I have drawn.
It is not only the disturbance of noise, that tortures. It is the stress, that triggers the pain from the infected nervous system. That is why I hate doves. Is that OK? If you are a Borr-alien?

AN ANGEL IN WHITE

HURRAH! BRAVO TO MY LYME-DOC!

JOIN US IN SCANDINAVIA IN CELEBRATING THE OFFICIAL OPENING OF NORWEGIAN (Lyme) BORELIOSE-CENTER.

This man, is the only ILADS doctor for ca 18 million people. Ca 50.000 infected with Bb a year.
Health care gives the IDSA-kind: 200mg Doxy in 14 days. Then the sick can carry their beds out of the hospital and stop pretending they're ill.

My doc has fought for us in a few years. He uses the German Augsburg-method. AND PEOPLE GET WELL!
The lame boy is running again!

My Angel-Doc is skinny, you cannot see his wings and his hair is short, but quite golden. I think it is the glory growing out of his scull.
He treats us with interest, passion to heal and the total respect for our souls and our bacterias.

COME RESCUE ME!

IMPRISONED BY LYME.

I colored my pain beautiful. Stop the war, badge says. No more atomic bombs! (In my joints.)(Fingers.) (Used to use them for work.)

Yellow is yelling - pain as sour as lemon. Like a cover-up or extra-skin.

See my eyes? Ever had neurological pain like glowing pins in the pupil?
Blue is icy neuro-pain, red is hammering, orange glowing.
The football is the trauma. The whole mess was named PTSD by my doctor. Post-traumatic stress-disorder. Ok, I said. Happy to have a name for this. It means my soul is aching? Yes, my Angel in White replied. Then the soul must be the biggest organ of the organism? I asked. She smiled, said nothing. I saw what she meant. It was all in my head. So here you look into the head of a patient of patience. For three years I got still worse. An expanding soul that crap was. By some kind of accident, a blood-sample was taken. "You have borrelia," she said. And then no more. What is that, I thought. After 3½ years. I found it on Google. OMG! 78 symptoms - I got bingo on 67. There it was! My Prison - no PTSD. What I hadn't got? Dementia, death, erection-disorder (well - I am a woman, but with lyme you never know).
I made an opening on top of the cell, just to get out of my skin some time.

MY NEUROLOGIST DR. ARKEBUZIUS.

SPECIALIZED IN MEASURING BLOODSTREAM IN THE BRAINS OF ELDERLY DEMENTED WOMEN.

So he measured mine.

As you see, the picture is not finished. I keep it in the cellar, were bad memories are locked up behind bars.

I feel sick, when I think back.

What he said? About me, having tremors, being spastic?

"They talk about neuroborrelisois - Lyme. There is no such. She is an old woman seeking attention. She is easily diverted. She has a colorful imagination. Her "tremor" is psychogenic."
I was dressed in orange. That sweater I have not used since. Makes me feel sick to my stomach and sad in heart.

Its said empathic doctors have the healthiest patients. They get cured, not harassed. - Makes kind of difference to your health---.

WHEN I GOT SPASTIC.

MY ARMS WERE WAVING, MY LEGS FLUTTERED, MY FEET STUMBLED.

I LOOKED LIKE A WINDMILL IN FULL STORM.

So what do you do? Sit home for 8-9 months waiting for spiros to leave just that area of your neurological -center?

I thought: I am not the only one with spastic disease or tremor. I go for my regular walk, let them stare, I do not give a damn. I want fresh air, it soothes the neuropatic pain in skin and eyes.

In the night, a shivering got the bed jumping. Very exhausting way to rest, but after a while the body felt warm, the heartbeat calmed down - and my body came to rest. What a joy! Life is wonderful!

DIAGNOSIS:

YOU LOOK GREAT.

That is Lyme.
When I came to the doctor, shivering, in pain, walking the stick, she looked at me: You look healthy.
Yes. That is Lyme.

Bacterias don't color you green. Alas. Else we would be pitied, taken care of, getting all sorts of medication. But who will treat you when you look like having the Time of Your Life?
And - sorry to say - you are having it.
Never forget the time you got ticked.
Out of the door you are kicked.
With your stick.
Feeling sick.
Wow - and looking Great!
HAPPY TIMES ARE HERE AGAIN.

MAYDAY! MAYDAY!

LYME AWARENESS.

This I made for the first Mayday-event on Facebook. In April you American Lymies got your spiros together and started warming up for May Lyme Awareness month.

Facebook going GREEN!

There is such go in you, when you are maydaying together! Americans are famous for this spirit!

IDSA is ruling even i Europe. We have a few ILADS-doctors. Health care does not pay for the treatment, so poor people can just lay there "pretending they got a chronic bug".

Me, I am lucky. I have relatives supporting me. As a poor artist, I would elsewhere have been a shivering bag of bacterias for the rest of my life.

On Sunday when Mayday Awareness is going on, I am on a flight to Norway, to see my doctor. So I shall sit there, praying for you all. Good luck! The Green Fighters have the winning concept: Chronic Lyme!

BEFORE LYME-TIME

I FELT THAT HAPPINESS WAS SCARCE MOMENTS.

Dancing for joy when it occurred.

Now, with Lyme-Borreliosis as we call it in Europe, dancing for joy is my everyday life. I can stand on my toes, waving one leg - as a prima ballerina, just for the fun of it, once, twice - and more in a day. Just to feel I am alive, despite the horror of pain and uncertainty. Every day is a struggle for being totally happy, don't worry. This disease is deadly. I am alive. Gods blessings are shining over each morning. - Painless for two hours ore more. I am recovering. Two hours of no pain! What a gift! I am dancing!
(This picture I made 1974, when ticks were many where I lived, and spirochetes rare.) ( I was living amongst mountains in the wilderness in Norway. One more reason to be happy.)

BORRELIA MENINGIT.

INFECTION TO THE BRAIN.

This is normally a serious stage. Me - I was kicked out from the doctors, with the words: You should go for regular walks.
Exercise they meant.

A" brain-infection work-out" - You've been to some too?

As I grew worse, I laid in bed trying to exercise my lounges, so they would not stop breathing. Hard, I can tell. Used my whole will to get air.
The autonomic nervous system had crashed. So had the rest of me. I could not move. Paralyzed. In bed, happily.
This started in the second year of my Lyme, the neuroborreliosis, which is most common in Europe.
I lost weight. Got so thin, that I could have started modelling.

You always gain something, when you loose a lot!

MY LYME-JOKE-DOC.

THE FUNNIEST DISEASE OF THE WORLD IS LYME.

3 doctors all agree: this patient should call her shrink. She is nuts, crazy, got it all in her head.

Yes I had. A billion bacterias in the brain and CNS and nervous system. But those bastard spiros were invisible.
You see my hands, glowing as hot oranges? It is the nervous pain.
Besides: my ears had started ringing, and where oversensitive to sounds. Me - an idiot had told that bluedress doctor about it. And there she comes: Laughing the roof off. And me in heavy shock.I still feel the vibs. - 4 years later -. HAHA. Great fun.

AS THE BOMB WAS TICKING.

I WAS WORKING.

I had a busy time, had to finish two huge pieces of art, packing 80 pieces for the full-scale exhibition of my life as an artist.
Grand success - 8 pages in the press. My grandchildren in trance - they "had a famous granny".

And time was running out. On opening night I was so ill, my throat burning, me near collapse - so exhausted. I could not take part of the Grand Opening-Night Party. 29 of June 2006. Since then no parties for me --.

I did not know this obscure flue was Lyme-Borreliosis, and bacterias spreading in my nervous system.

AT THE HAUNTED CASTLE OF SOUTHERN SWEDEN

I WAS BITTEN BY A TICK.

I knew nothing about the tick-borne disease, in Europe called Lyme Borreliosis.

I found the tick in my left armpit, 3 days later. I had earlier been living in a part of Norway, where ticks were common, but Lyme-Borreliosis rare. So I picked that tick out of my skin, burned the sack full of my blood, with a match, as I used to do, living in Tickland in Norway. - Not knowing that the castle of Krapperup, Sweden was haunted since 1500. Every 50. year a catastrophe would strike a poor victim. Now it was me - I got Lyme.

NEVER KNEW I GOT TICKED.

WHEN I LEFT THAT PARTY - I HAD A GUEST COMING MY WAY - MY FIRST BACTERIA BURGDORFERI.

My new life had started. I was to be an Empire State Building with every floor occupied by guests who did not pay the rent.

See that sneaky look of an intruder - emperor - secret thief to steal my body and torture my soul.

In Europe the garinii species of the bacteria is most common. What a dish my nervous system was to be -

IN TICK-LAND - HURRAH!

SUCH FUN IN THE GREEN-GRASS OF SOUTHERN SWEDEN!

June 3. 2006

I never knew this happy day would change my life.
Ruin my career.
Be my most memorized day.
Make my old age a pest.

Welcome to my blog. I am Norwegian, living in Sweden, not a profs in English, but do the best I can.
Just to show that even a Lymie can have fun in bed. With a lap-top and a Facebook in space.